Learning to be a human

“If you cut me do I not bleed?”

Why do you react emotionally? For me emotion is a bit of an alien concept. I feel more now than I did on the higher antipsychotic dose but there still seems to be a disconnection there.

For example, I recently saw a loved one crying and yet I felt nothing. In my head I knew that they were upset so my logical reaction was to console them because that’s what you do in those situations.

In reading this you’ll probably consider me a rather cold individual (maybe even a Vulcan?) who only cares because that is what ‘should’ be done. But hang on a second.

What if this emotional detachment could be a natural part of growing up that is generally experienced during childhood when a person isn’t so aware of their thoughts; but in my case (because of my condition) it is something I am coming to as an adult?

In other words am I more cognisant of the process of developing emotions because I am older than people generally are when they engage with them?

And could this ring true for other people who are in my situation?

Medication

I like to say that Japanese saved me. I stumble upon it during my second attempt at University when I noticed it was offered as a complimentary study course and thought it might be cool. After my psychotic episode (that put an end to my studies at degree level) I continued to study Japanese independently at home.

The prospect of a day studying Japanese almost organically became my reason for getting out of bed in the morning and staying away from my bedroom for the rest of the day. Anyone who has been prescribed major tranquilisers will empathise that this is no mean feat!

My studies gave me direction but there was something about learning Japanese that enabled me to remove myself from the difficult mental processes I was experiencing. I could almost tangibly feel my mind whirring around outside of my body. I guess I had essentially managed to put my fingers into my ears and sing “lalalalalalala” at the top of my voice.

The interesting thing was that through this technique I was gradually able to explore my boundaries more and more. It was as though the Japanese study was some kind of temporary scaffold that enabled the reconstruction - by which I mean the rehabilitation – of me on a personal level.

Now the Japanese has largely fallen by the wayside and my passion for thinking has been re-realised which feels great. I know that there is still a long way to go of course, but the progress is promising.

As time passed I began to wonder if my experience with the Japanese study could be compared to my experience with antipsychotic medication. Does the medication provide a supporting scaffold that serves the rebuilding effort?

Retrospective

A hundred years ago someone said that everything that we ever needed had already been invented. Do you ever wonder what people in the future will think when they look back at the world as it is today (in the event that a clean alternative is found for fossil fuel, so that the world doesn’t tear itself apart when supplies run low – oh and don’t forget someone discovering how to undo climate change)?

One of the things that strikes me personally is medication. I am taking the a-typical antipsychotic called Olanzapine. As far as my understanding goes antipsychotics were discovered to be effective treatments for psychosis by accident and it is not fully known why they work.

While taking it I have noticed significant changes in my emotional spectrum AS well as a reduction in psychotic thinking. Now that the dose has been lower slightly I am beginning to rediscover (sometimes overwhelmingly) my original emotional range. Unfortunately the positive symptoms appear to have grown slightly stronger too.

But is the medication a good thing? Does it treat the condition or the symptoms?

Apparently advances in genetics will have a big part to play in the future of how Schizophrenic disorders are treated and even cured. Also, the medication - such as the one that I am on - whilst alleviating the symptoms may be causing long term damage to the patient’s physiology.

Is it so difficult to picture a medical professor lecturing his pupils in the future on the archaic medicines that used to be prescribed so readily; in the same way that people now think about prefrontal lobotomies? Of course a lot of people are finding they are better off on medication as there is no alternative treatment at the moment beside psycho-socio therapy……or is there?

You could call it a conspiracy theory (and don’t worry, I’m keeping a close watch on this one) but I recently heard of a ruse by the pharmaceutical companies in America to suppress information about natural medicines that are equally effective as their counterparts – but without the unpleasant side effects – simply because they aren’t patentable and so wouldn’t make any money for their companies.

Is it true? Why would so many people testify that they are getting better naturally? And what is in it for them? Is it just me or isn’t it easier to believe that the pharmaceutical companies would choose to deny the efficacy of natural treatment because they have such a high stake in the game?

I don’t know what damage the Olanzapine is doing to my body. I read on the leaflet that comes in every box that tardive dyskinesia and diabetes can await the long term user so I’m slightly worried and eager to get my dose lowered as quickly as possible.

I’ve been on a dose of 17.5mg down from 20mg for over four months now and things are definitely better but it was not an easy period. It’s been four months of disruption and frustration and pain for me and my loved ones. Finally though things seem to have levelled out and I can start wondering how the months following the next drop will pan out?

Does it ever feel like things are spiralling out of your control?

“The world is too big”

It’s become a real struggle lately to get through the days. I don’t seem to have the capacity to deal with everything that’s going on. Yesterday my brain got to a point where it decided to pull the covers over its head, shut its eyes and clamp its hands over its ears. I was left in a largely vegetative state; I was in no way anxious or unhappy, I was just numb.

My sister took me for a walk to see if that would help me feel more myself. Although I could look around and focus on the scenery, I couldn’t focus on it in my mind. The same went for my thoughts; I felt empty. There was no articulation going on in my mind except the intrusive loop of song lyrics. I felt like a blank canvas.

Song lyrics have become particularly oppressive recently. They never really bothered me before but now they are bad enough as to drive me to insanity. And they are not alone. The intrusive thoughts and images seem to be getting worse. I put this down to the lower antipsychotic dose I am on now.

CONSTANT VIGILANCE!!              

It feels like an uphill battle at the moment, like I’m straining to survive. It would be so easy to let my guard down and allow the intrusions to rule me. That does worry me quite a lot. What if I start to go along with those thoughts and ideas? I know in theory that they are my thoughts and ideas because they originate from my mind but I have to keep reminding myself of that.

When I’m tired the intrusions are particularly strong and unfortunately tiredness has become a feature of late. This I put down to the meds also. I heard that people with Schizophrenia have to work twice as hard as people not afflicted to deal with their thoughts. It’s no great leap to see how even a 2.5mg reduction of a 20mg dose could make a lot of difference in this respect.